Courtney’s Love

A few months ago, I wrote a post about the Little Sisters of the Poor and their loving, life-giving ministry to those who are nearing the end of their lives. I’ve thought about that post, and the work of the Little Sisters, a lot since writing it.

I thought of it when learning of a friend’s death this summer from brain cancer. I thought (and continue to think) of it when hearing about Ebola victims in Liberia, where many die without the comfort of human touch or even simple, loving attention, due to the (well-founded) fears of transmitting the disease. I thought of it the other day while listening to yet another episode of the Diane Rehm Show, this one about “Being Mortal: What Matters In The End.”

And I have especially thought of it while reading Facebook and blog updates from Mary Lenaburg, of Passionate Perseverance. For those of you unfamiliar with her blog, Mary has a 22-year-old daughter, Courtney, with some very special needs. Courtney is unable to talk or walk, to feed herself, even to see. She also experiences frequent, frightening, and often severe seizures. Sadly, it now appears that Courtney’s life is nearing its end.

Mary and her family have spent years (and a not-insignificant amount of money) caring for Courtney and providing for her every need and comfort. Doctors’ visits, therapies, surgeries, medicines, tube feedings, illnesses, hygiene care, round after round of wrangling with insurance companies – the Lenaburgs have done it all.

That’s remarkable enough – the sheer work and angst of caring for a completely dependent, very ill child for 22 years. But what’s more remarkable, and more to the point, is that the Lenaburgs have loved.

Courtney Lenaburg has been loved unlike anyone I’ve ever encountered in my life.

Mary and Jerry Lenaburg and their son Jonathan have loved Courtney through their work to care for her. But they’ve also talked to her, prayed with her, read to her, laughed with her, held her, clasped her hands, given her massages, sewed her clothes, dressed her with great attention, made her surroundings beautiful and cheerful… and so much more.

Honestly, nothing I write here can come close to describing all the ways in which the Lenaburgs have loved Courtney.

Mary and Jerry have also, through their extended family, their church, and Mary’s blog (and many other avenues, I’m sure), built up an incredible community of friends around Courtney, and around themselves. They’ve loved those friends too. They’ve prayed for them, they’ve helped them, and they’ve afforded them the great privilege of doing the same.

(When I was in labor with my youngest, Mary sent me a message to tell me that she and Courtney were praying for me. I’m sure that I’m one of many, many people to have received such a message from the Lenaburgs through the years.)

I don’t know Mary well. We met last summer at Like Mother, Like Daughter’s DC meet-up. We enjoyed a great Cuban dinner together with another Mary friend a couple of months later. And my boys and I had the opportunity to visit with Mary and Courtney at their home this past spring. Yet I feel like I know Mary well. Part of that, I think, is the mark of a good blogger. But the bigger part of it is that Mary puts her love out there for the world to see, and that love has a way of catching you, of drawing you close and folding you up as if it were your own.

In this year of knowing Mary (and through her, Courtney), I’ve learned something about love. (An undefined, powerful kind of something that I feel in my chest, but can hardly describe except to say, “I’ve got to love more.”) I’ve learned something about loving your child, your husband, your friends, about loving God. I’ve learned something about loving through hardship, about tenacity and stretching to meet the challenges put before you.

And I’m just one person.

I have a hard time conceiving of just how many people have been touched and taught by the Lenaburgs. Courtney’s love has gone out into the world and done amazing things, I’m sure of it. It’s softened hearts, it’s shored-up relationships, it’s brought people closer to God. It’s spurred generosity and engendered gratitude. It’s helped people to see the value in those around them. What a beautiful legacy.

As Courtney’s time here comes to a close, I am comforted (not that I have any right to require comfort) by the knowledge that when she passes, Courtney will be surrounded by as much love as one could possibly be. And that she’ll be passing straight from the loving arms of her earthly family to the loving arms of her heavenly Father.

Love, love, love.

The beautiful thing, of course, about the Little Sisters of the Poor is also love – their love for Christ, their love for those whom they serve. Just as the Lenaburgs care for, love, and pray for Courtney, so do the Little Sisters care for, love, and pray for the elderly poor.

What a gift.

It is this love – between Mary and Courtney, between the members of the Lenaburg family, their friends, and their online community, between the Little Sisters of the Poor and the elderly poor – it is this love, a gift from God, which touches us and teaches us and gives us a glimpse of the divine.

Thank you, Mary, for sharing your love with us – for sharing Courtney with us.

~~~

To learn more about Mary and Courtney, please visit Passionate Perseverance. The Lenaburgs are having a particularly rough (and now in some ways, a particularly blessed) time of it right now. Not only are they caring for Courtney and preparing to say goodbye to her, but they’re also planning Courtney’s funeral. On top of that, Jerry is slated to be laid-off from his job at the end of the month. And (can you believe there’s an “and”?) they’ve just learned they’ll need to make some major (read: expensive) repairs to their sewage line.

In the past 24 hours (the 24 hours it took me to finish this post!) there’s been a tremendous upsurge of support for the Lenaburgs, so it looks like the repair costs will be taken care of. But they could still use help in covering the cost of Courtney’s funeral and in paying down their medical debt. I hope you’ll consider helping them out if you’re able. GoFundMe and PayPal buttons are located on Mary’s blog. Thanks in advance for any assistance you provide – and for your prayers!

I Don’t Treasure Every Moment

I feel like I’ve been bombarded lately with reflections on motherhood. Some have been my own, prompted by unpleasant interactions with my boys. Others have been on blogs that I read or in pieces shared by friends on Facebook. In turn, they’ve brought me down, given me comfort, and frustrated me.

When I review them together, I take away the following lessons: Keep reflecting. Keep trying. Always aim for improvement, but don’t aim for perfection. And above all: Don’t worry about treasuring every moment. Treasuring your children is enough.

P1170387

The “every moment” debate is hardly new. As soon as you have a baby, older mothers command you to “Treasure every moment! They grow up so fast!” You know they mean well and they miss having small children around, so you smile and nod. Even though you’re panicking inside: “I’m exhausted/hungry/uncomfortable/stressed out – how am I supposed to treasure this?” So you go to your good girlfriends and your favorite mommy blogs for comfort – the ones who know that there’s absolutely nothing to treasure about cleaning vomit off your child’s crib at midnight.

But increasingly, I keep seeing admonitions like “treasure every moment” and its relative, “babies don’t keep” from young mothers. From those who are in the thick of it, just like me. And I have to admit: coming from them, the message really gets under my skin. I don’t understand how those women are able to live their lives like that.

Now, I’m quite aware that our children are infinitely precious, that their lives can be fragile, and that our time as mothers to little ones is fleeting. I understand the feeling behind “treasure every moment” and “babies don’t keep.” And I concede that for some – those who have lost babies, or whose children have life-threatening illnesses, or who struggle with fertility issues – the messages must be especially powerful. I admire those who can keep them in the backs of their minds at all times.

But I don’t, honestly, understand how “treasure every moment” and “babies don’t keep” can be fully lived out on a real-life, day-to-day basis.

P1170253

P1170254

Here’s an example of what I don’t get – some thoughts from a mother regarding her young daughter:

“What she doesn’t know is that I’d hold her every day just like this. She could ask me anytime, anywhere, and I would drop whatever I was doing to take her up into my arms and feel her warm little heart beating next to mine.”

It’s a lovely image, but it doesn’t resonate with me. I just don’t feel this way.

I know a lot of people will think I should. I know that lots of women will tell me that holding my child is more important than anything else I could do with my time. But here’s the thing (and this is where my circumstances differ from the author’s): My children aren’t the non-cuddly type for whom such requests are rare. Both of my boys ask to be hugged or held more times in a day than I could possibly count. Both of them are borderline OCD about bestowing kisses on not one, but both of my cheeks. Both of them would spend hours at my feet (like, literally at/on/between my feet) every day if I let them.

P1160910

P1160907

Just the other day as I was trying to prepare lunch, my two-year-old came into the kitchen with a pathetic little face and a “Hod me, Mommy.” He did it again, and again, and again – roughly once every three minutes. The first few times, I obliged him. I knelt on the floor and threw my arms around him and held him tight and told him that I loved him. I gave him kisses and I absorbed his sweetness. Then I had to peel his arms off of me, I hoisted myself into a standing position, and I shooed him away so that I could resume making our lunch.

I did it again and again and again. And then I snapped. Because the lunches still needed to be made. I was fifteen minutes into the chore and all I’d done was warm the pan and pull out the bread and cheese. I wasn’t getting anywhere shifting my increasing bulk onto and up from the floor every three minutes to cuddle with my (admittedly very cute) little guy. So I yelled for him to go, GO into the other room. And yes, I felt guilty about it.

Those “treasure every moment” and “babies don’t keep” admonitions – they carry so much pressure. How in the world am I supposed to keep my household functioning and my children fed, clothed, and clean if I spend the whole day rocking, reading, and playing? And how in the world am I supposed to treasure every moment when I’m pulled in a hundred different directions and babies are crying and toddlers are fighting and toys are blaring and somebody’s sitting on my feet while I’m trying to make dinner?

P1170397

I can’t. I just can’t.

So I choose to pop the bubble of that pressure. Instead of giving in to it, I tell myself: Don’t worry about treasuring every moment. Treasuring your children is enough.

I don’t go so far as to treat motherhood as some awful, horrible burden. Those exaggerated articles bother me much more than the sugary-sweet “I would hold my children all day if they wanted me to” posts. But still, if someone were to listen in on the litany of grumpy thoughts that run through my head while reading those young mothers’ “treasure every moment/babies don’t keep” words, they might well be appalled. And they’d probably be even more appalled to listen in on the thoughts occupying my mind during my boys’ daily crying/whining/fighting/pleading fests, which, to be honest, feel like assaults on my senses. The listener might well think I take those boys for granted, that I think more of my own needs than theirs.

But it’s just not true.

I think my children are the most beautiful people in the world. I am in love with their long eyelashes, their soft cheeks, their twinkling eyes, their love for hugs and kisses, their curiosity, their kindness, their creativity, their spunk. A hundred times a day, I see my boys pass me and I feel a pang of gratitude for their precious little lives. I accompany almost every diaper change, hand washing, and car-seat buckling with a kiss. I can barely begin to describe how intensely I love those boys.

And through any number of decisions, in small and big ways, I put their needs first. My daily life revolves around serving them. P1170404

But my boys aren’t the only ones in my home who have needs. We parents have needs too. Some are simple: my husband needs to have big, hearty, healthy, home-cooked dinners more nights than not. (Which takes a not-insubstantial amount of planning, time, and effort on my part.)

Some needs are more complicated: I have a hot temper and an easily over-stimulated, overwhelmed mind. (And let me tell you, that’s not a great combination for a mother of small boys.) I have learned that in order for me to be able to handle all the noise and fighting and demands that come with little boys, I need to have an ordered background (note: ordered, not necessarily clean). I also need to have some short pauses of quiet during my day. (And if I have to get that quiet by turning on the television, so be it.) I am infinitely better equipped to be kind and patient with my boys when those needs are met.

P1170211

Telling me to forgo an ordered home and quiet personal moments in pursuit of “quality time” with my boys puts me in a hard place: It’s a choice between (a) personal sanity but supposedly neglected children and (b) stress and anger but supposedly loved children. Neither choice is acceptable.

So I choose instead to smash that “babies don’t keep” lens through which some view parenthood. I don’t think it’s accurate anyway. Parenthood is not an either/or situation. It’s an and/and/and situation.

My service to my boys is not limited to my “quality time” with them. Yes, I serve my boys when I read to them, play with them, and shower them with hugs and kisses. But I also serve my boys – and my husband – when I clean their clothes, when I prepare their meals, when I do the dishes. All of these tasks are part of my role as wife and mother. I do myself and my family a disservice when I treat some of them as unimportant.

That said, I’m never sure whether I’m striking the right balance. Sometimes I look happily around at my (rarely, I promise) clean kitchen and I spot a lonely little boy. Sometimes I put off all my chores to do fun things with my children, only to melt down later because I’m so overwhelmed by what has stacked up. Sometimes I find myself shouting “Go! GO into the other room!” too frequently.

That’s why I keep reflecting. That’s why I keep trying. I aim for improvement, but I cut myself a break by not aiming for perfection. I know that I’m not capable of it. I have my own set of struggles and inadequacies. So do my boys, and so does my husband.

By the grace of God, I’ve come to realize that I shouldn’t waste time ignoring or being ashamed of those struggles and inadequacies. Rather, I should take them into account. I should factor them into our plans. For me, a large part of that is granting myself the following: Don’t worry about treasuring every moment. Treasuring your children is enough.

P1170199

A Tale of Two Soldiers, Revisited

The following post is from this past July. To mark Veterans Day (and Ed’s 88th birthday tomorrow), I thought it was worth sharing again.

Thank you to all who have served and sacrificed for our country in the armed forces.

When we were in Minnesota last week visiting my husband’s family, we paid a couple of visits to Brennan’s stepfather, Ed, at his nursing home. Ed is the man who taught my husband about responsibility, who provided him with structure and support through his teenage years, who was there for Brennan in the difficult time after his own father passed away. Ed is also a World War II veteran who fought in the Battle of the Bulge and was wounded just days before the war ended.

With my own parents still in their ‘50’s, it was more than a little difficult for me to get used to having a (step)father-in-law who is a member of the “greatest generation.” And I have to admit that, having seen him only once or twice a year for the past six years, I don’t know Ed very well. But I know that my husband loves and respects him. And I know that he has lived a long and interesting life, with his fair share of pain.

Some of it, of course, can be traced to his service in that awful war. Shortly before it ended, Ed found himself in Passau, Germany. In trying to rescue his sergeant, who had been shot, Ed was himself shot in the lung and the arm. He earned the bronze star for his actions. And he has lived with the repercussions of his injuries ever since.

Standing in Ed’s nursing home room during this year’s visit, I was reminded powerfully of an exchange I had with another World War II veteran, 13 years ago. Then, I was sitting on a train platform outside Munich – exhausted, overwhelmed, and anxious – having just arrived hours before – by myself – for a summer studying German at a language institute in Bavaria.

The elderly, frail gentleman was sitting on a bench by himself. I’m sure he could tell I felt lost, looking around for a perch for myself and my unwieldy luggage. He indicated that I should sit next to him. Once it became obvious that I was an American (and quite possibly this was obvious before I even opened my mouth), he started speaking to me in English. We made small talk; I told him about my plans to study German that summer.

After a few minutes chatting cordially, he paused and looked at me intently. He said “An American did this to me.” Turning slightly, he revealed to me the shoulder that I could not, until then, see. It looked like a large chunk of flesh had been carved away from it. His scrawny arm hung lamely at his side. “I saw the man who did it,” he said. “I saw his eyes.”

Lightening his tone somewhat, he continued: “I don’t blame him. We were at war. We were doing what we were told. If he hadn’t shot me, I would have shot him.” (Pause – deathly still pause.) “War is an awful, horrible thing. It is always horrible. Don’t you ever forget that.”

Then, stripping away the tension entirely, the old soldier smiled and told me, “I love America. My wife and I visit New York with friends every year.” Before we parted, he raised his eyebrows at me and said, “Now, as soon as you arrive at your institute, you call your mother. You call your mother. She’ll be worried about you.”

I don’t think I’ll ever forget the experience.

Whenever I see an elderly person, particularly one who looks weak or ill, I wonder what kind of a life they’ve lived. I wonder at the events and the change they must have seen in their lifetime. Whenever I see an old man wearing one of those hats that veterans wear – the kind that denotes the ship they served on – I envision the young, strong man he must have been. I don’t know what to say or do, except to show a little kindness and maybe a little love. I want to ask, but I don’t want to intrude. I want to thank, but I don’t want to sound trite. So mostly I just wonder. And I say a little prayer.

With Ed, I know something of his story. But I still don’t know what to say. So I show some kindness and some love. I give him a hug and a kiss. I encourage the boys to do the same for their “Baba Ed.” Every once in a while, I have the boys color him a picture and we stick it in the mail. And I pray.

I still think of that old German soldier – a veteran of the same war as Ed. The war that forever damaged his shoulder and Ed’s lung. They fought on different sides. Maybe they had different aims, but I think they were probably both just doing what was expected of them. Years later, I get a glimpse of their service in that faraway time, and I wonder. Quite a thing to think about, isn’t it?